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Health Care Resources
American Disabled for Attendant Programs Today (ADAPT) 201 S. Cherokee Denver, CO 80223 Phone: 303-733-9324 Website: www.adapt.org/ E-mail: adaptbabs@earthlink.net
Attendant services (help with eating, dressing, toileting, moving from wheelchair to bed, etc.) are the cornerstone to community based services for people with severe disabilities. ADAPT is working to get 25% of the Medicaid long term care funds redirected to pay for a national, mandated attendant services program.
American Academy of Physical Medicine and Rehabilitation (AAPMR) 330 North Wabash, Suite 2500 Chicago, IL 60611-7617 Phone: 312-464-9700 Fax: 312-464-0227 Website: www.aapmr.org Contact: Dawn Brennaman, dbrennaman@aapmr.org
The American Academy of Physical Medicine and Rehabilitation serves its member physicians by advancing the field of physical medicine and rehabilitation, promoting excellence in psychiatric practice, and advocating on public policy issues related to disability.
American Association of People with Disabilities (AAPD) 1629 K Street, N.W., Suite 503 Washington, D.C. 20006 Phone: 202-457-0046 or 800-840-8844 Fax: 202-457-0473 Website: http://www.aapd-dc.org/ Contact: Gwen Gillenwater, 202-457-0046 ext. 31, aapdgwen@aol.com
AAPD is the largest national nonprofit cross-disability member organization in the United States, dedicated to ensuring economic self-sufficiency and political empowerment for the more than 56 million Americans with disabilities. AAPD works in coalition with other disability organizations for the full implementation and enforcement of disability nondiscrimination laws, particularly the Americans with Disabilities Act (ADA) of 1990 and the Rehabilitation Act of 1973.
American Association on Health and Disability 110 N. Washington Street - Suite 340 Rockville, MD 20850 Phone: 301-545-6140 Fax: 301-545-6144 Website: www.aahd.us Contact: Roberta Carlin, rcarlin@aahd.us, 301-545-6140 ext. 206
The mission of AAHD is to contribute to national, state, and local efforts to prevent additional health complications in people with disabilities, and to identify effective intervention strategies to reduce the incidence of secondary conditions and the health disparities between people with disabilities and the general population. AAHD accomplishes its mission through research, education and advocacy.
American Public Health Association 800 I Street, N.W. Washington, D.C. 20001-3710 Phone: 202-777-2742 Fax: (202) 777-2534 Website: www.apha.org Contact: Courtney Perlino, 202-777-2436, courtney.perlino@apha.org
APHA is concerned with a broad set of issues affecting personal and environmental health, including federal and state funding for health programs, pollution control, programs and policies related to chronic and infectious diseases, a smoke-free society, and professional education in public health.
Association of University Centers on Disabilities (AUCD)
AUCD's mission is to advance policy and practice for and with people with developmental and other disabilities, their families, and their communities by supporting members in research, education, and service activities that achieve AUCD’s vision.
Center for Disability Issues and the Health Professions (CDIHP) 309 E. Second Street Pomona, CA 91766-1854 Phone: 909-623-6116 Website: www.cdihp.org E-mail: info@cdihp.org
The mission of the Center for Disability Issues and the Health Professions at Western University of Health Sciences is to enhance health professions education, and to improve access for people with disabilities to health, health education and health care services.
Center for Law and Social Policy (CLASP) 1015 15th Street N.W., Suite 400 Washington, D.C. 20005 Phone: 202-906-8000 Fax: 202-842-2885 Website: www.clasp.org Primary Contact: Mark H. Greenberg, mhgreen@clasp.org CLASP is a nonprofit public policy and advocacy organization. They conduct research, policy analysis, technical assistance, and advocacy on issues related to economic security and family stability for low-income parents, children, and youth. Their analyses, in-depth reports, policy briefs, fact sheets, and testimony are posted on their website, organized by topic area.
Center on Budget and Policy Priorities 820 1st Street, NE, #510 Washington, D.C. 20002 Phone: 202-408-1080 Fax: 202-408-1056 E-mail: center@cbpp.org Website: www.cbpp.org/pubs/health.htm
The Center on Budget and Policy Priorities conducts research and analysis to inform public debates over proposed budget and tax policies and to help ensure that the needs of low-income families and individuals are considered in these debates.
Center for Workers with Disabilities 810 First Street, N.E. Suite 500 Washington, D.C. 20002 Phone: 202-682-0100 Fax: 202-204-0071 Website: www.aphsa.org/disabilities/home/index.htm
The Center for Workers with Disabilities is a technical assistance center for states enhancing or developing employment supports programs for working persons with disabilities; most of the 30 plus states supported by the Center are supporting employment supports development with Medicaid Infrastructure Grant (MIG) funds established under the Ticket to Work and Work Incentives Improvement Act of 1999 (P.L. 106-170).
Consortium for Citizens with Disabilities (CCD) 2660 L Street, Suite 700 Washington, D.C. 20036 Phone: (202) 783-2229 Fax: 202-783-8250 Website: www.c-c-d.org E-mail: Info@c-c-d.org
Since 1973, the CCD has advocated on behalf of people of all ages with physical and mental disabilities and their families. CCD has worked to achieve federal legislation and regulations that assure that the 54 million children and adults with disabilities are fully integrated into the mainstream of society.
Disability Rights Education & Defense Fund (DREDF) 2212 Sixth Street Berkeley, CA 94710 Phone: 800-348-4232 or 510-644-2555 Fax: 510-841-8645 Website: www.dredf.org E-mail: info@dredf.org
The mission of the Disability Rights Education and Defense Fund is to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development.
Disabled American Veterans 3725 Alexandria Pike Cold Spring, KY 41076 Phone: 877-I Am A Vet (877-426-2838) or 859-441-7300 Website: www.dav.org
The 1.2 million-member Disabled American Veterans, a non-profit organization founded in 1920 and chartered by the U.S. Congress in 1932, represents this nation’s wartime disabled veterans. It is dedicated to a single purpose: building better lives for our nation’s disabled veterans and their families.
Easter Seals 230 West Monroe Street, Suite 1800 Chicago, IL 60606 Phone: 312-726-6200 or 800-221-6827 Website: www.easterseals.com
Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 80 years. From child development centers to physical rehabilitation and job training for people with disabilities, Easter Seals offers a variety of services to help people with disabilities address life’s challenges and achieve personal goals.
Empowerment for Americans with Disabilities: Breaking Barriers to Careers and Full Employment
This report comprehensively reviews the issues integral to the employment of people with disabilities. It has two broad aims: a) to summarize the existing knowledge regarding the employment of people with disabilities in a series of short issue briefs and b) to present new information on the perspectives of employers, people with disabilities, and disability specialists on the key barriers to and facilitators of employment.
Families USA 1201 New York Ave. Suite 1100 Washington, D.C. 20005 Phone: 202-628-3030 Fax: 202-347-2417 Website: www.familiesusa.org/ E-mail: info@familiesusa.org
Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Working at the national, state, and community levels, they have earned a national reputation as an effective voice for health care consumers for over 20 years.
Healing Hands: A Comprehensive Approach To Substance Abuse and Homelessness
Healing Hands is a publication of Health Care for the Homeless Clinicians’ Network, National Health Care for the Homeless Council. This issue explores common themes in effective substance abuse programs, characteristics of homeless people with substance use disorders, and harm reduction strategies.
Health & Disability Advocates Phone: 312-223-9600 Fax: 312-223-9518 Website: www.hdadvocates.org E-mail: hda@hdadvocates.org
Health & Disability Advocates is committed to protecting rights of children, people with disabilities, and low-income older adults. These vulnerable populations need a range of services; supports and opportunities to lead fulfilling lives; reach their self-determined goals; and obtain financial security.
Law, Health Policy & Disability Center 280-1 Boyd Law Building Iowa City, IA 52242-1113 Phone: 319-335-8469 Fax: 319-335-9764 Website: www.disability.law.uiowa.edu/index.htm Contact: Michael Morris, 202-296-2046, mmorris@ndi-inc.org
The Law, Health Policy, and Disability Center is an emerging leader in law, technology, education and research. The Center is focused on improving the quality of life for persons living with disabilities. Based at the University of Iowa College of Law, with offices in Washington, D.C., and elsewhere, the Center concentrates on public policy and its impact on persons with disabilities, with an emphasis on employment, self-determination and self-sufficiency.
The Lewin Group 3130 Fairview Park Drive, Suite 800 Falls Church, VA 22042 Phone: 703-269-5500 Fax: 703-269-5501 Website: www.lewin.com Contact: Colleen Hirschkorn, colleen.hirschkorn@lewin.com
The Lewin Group is a premier national health care and human services consulting firm with more than 35 years of experience finding answers and solving problems for leading organizations in the public, nonprofit, and private sectors.
National Alliance on Mental Illness (NAMI)
Colonial Place Three 2107 Wilson Blvd., Suite 300 Arlington, VA 22201-3042
Phone: 703-524-7600
Fax: 703-524-9094
Website: http://www.nami.org/Hometemplate.cfm
The National Alliance on Mental Illness (NAMI) has established an online Veterans Resource Center to help support active duty military personnel, veterans and their families facing serious mental illnesses such as depression, post-traumatic stress disorder (PTSD) and schizophrenia.
The Center's resources include a growing compilation of fact sheets, self-help information, online discussion groups, research and policy updates, and links to government agencies and other private organizations. NAMI has made the Center a priority to meet a growing need.
To visit the NAMI Veterans Resource Center, click here.
The National Consortium for Health Systems Development (NCHSD)
205 W. Monroe, Suite 300 Chicago, IL 60606 Phone: 312-223-9600 Fax: 312-223-9518 Website: www.nchsd.org E-mail: nchsd@hdadvocates.org
The National Consortium for Health Systems Development (NCHSD) facilitates state-to-state information sharing among states that are developing comprehensive health and service systems for people with disabilities who want to work. NCHSD staff and partner states provide flexible, state-tailored technical assistance through a wide variety of activities that build on an extensive network of policy stakeholders.
National Council on Independent Living (NCIL) 1710 Rhode Island Ave., N.W. 5th Floor Washington, D.C. 20036 Phone: 703-525-3406 Website: www.ncil.org E-mail: ncil@ncil.org
The National Council on Independent Living (NCIL) is the oldest cross disability, grassroots organization run by and for people with disabilities. Founded in 1982, NCIL represents over 700 organizations and individuals including: Centers for Independent Living (CILs), Statewide Independent Living Councils (SILCs), individuals with disabilities, and other organizations that advocate for the human and civil rights of people with disabilities throughout the United States.
National Disability Rights Network (NDRN) 900 Second Street, N.E., Suite 211 Washington, D.C. 20002 Phone: 202-408-9514 ext. 107 Fax: 202-408-9520 Website: www.ndrn.org E-mail: info@ndrn.org
The National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities. Collectively, the P&A/CAP network is the largest provider of legally based advocacy services to people with disabilities in the United States. Through training and technical assistance, legal support, and legislative advocacy, NDRN works to create a society in which people with disabilities are afforded equality of opportunity and are able to fully participate by exercising choice and self-determination.
The National Health Law Program 1101 14th Street, N.W. Suite 405 Washington, D.C. 20005 Phone: 202-289-7661 Fax: 202-289-7724 Website: www.healthlaw.org E-mail: nhelpdc@healthlaw.org
The National Health Law Program is a national public interest law firm that seeks to improve health care for America’s working and unemployed poor, minorities, the elderly and people with disabilities. NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
National Mental Health Association (NMHA) 2000 N. Beauregard Street, 6th Floor Alexandria, VA 22311 Phone: 703-684-7722 Fax: 703-684-5968 Website: www.nmha.org
The National Mental Health Association (NMHA) is the country’s oldest and largest nonprofit organization addressing all aspects of mental health and mental illness. NMHA works to improve the mental health of all Americans, especially the 54 million individuals with mental disorders, through advocacy, education, research and service.
National Organization on Disability (NOD) 910 Sixteenth Street, N.W., Suite 600 Washington, D.C. 20006 Phone: 202-293-5960 Fax: 202-293-7999 Website: www.nod.org E-mail: ability@nod.org
The mission of the National Organization on Disability (N.O.D.) is to expand the participation and contribution of America’s 54 million men, women and children with disabilities in all aspects of life. By raising disability awareness through programs and information, together we can work toward closing the participation gaps.
National Rehabilitation Association 633 S. Washington Street Alexandria, VA 22314 Phone: 703-836-0850 Fax: 703-836-0848 Website: www.nationalrehab.org E-mail: info@nationalrehab.org Being the longest-serving and one of the strongest organizations in providing advocacy and awareness on behalf of individuals with disabilities, the National Rehabilitation Association’s Governmental Affairs professionals are committed to communicating the importance of informed grassroots advocacy and enhanced outreach to every level of government to ensure the continuation of evidence-based rehabilitation practices and policies.
National Spinal Cord Injury Association 1 Church Street #600 Rockville, MD 20850 Toll-free: 800-962-9629 Fax: 301-990-0445 Website: www.spinalcord.org E-mail: info@spinalcord.org NSCIA educates and empowers survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. The Association fulfills this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education.
Paralyzed Veterans of America (PVA) 801 Eighteenth Street, N.W. Washington, D.C. 20006-3517 Phone: 800-424-8200 Website: www.pva.org E-mail: info@pva.org
Paralyzed Veterans of America works to maximize the quality of life for its members and all people with SCI/D as a leading advocate for health care, SCI/D research and education, veterans’ benefits and rights, accessibility and the removal of architectural barriers, sports programs, and disability rights.
Statehealthfacts.org
Statehealthfacts.org, from the Henry J. Kaiser Family Foundation, provides free, up-to-date, and easy-to-use health and health policy data on all 50 states. Statehealthfacts.org has data on more than 500 health topics including Medicaid and SCHIP, Medicare, health coverage and the uninsured, health costs and budgets, providers and service use, minority health, women’s health, and HIV/AIDS.
Substance Abuse Treatment Facility Locator
The Substance Abuse Treatment Facility Locator lists private and public facilities that are licensed, certified, or otherwise approved for inclusion by their State substance abuse agency and treatment facilities administered by the Department of Veterans Affairs, the Indian Health Service and the Department of Defense.
Supportive Housing and Its Impact on the Public Health Crisis of Homelessness
These results from a study conducted by independent researchers from the Goldman School of Public Policy at the University of California at Berkeley, show a significant relationship between supportive housing and its effects on tenants’ health and attendant health care costs. This report shows that for the more than 250 tenants who were given the opportunity to move from the streets or shelters to Canon Kip Community House and the Lyric Hotel in San Francisco, emergency room use decreased by 58 percent. For those residents who stayed housed at least one year, the number of days in the hospital decreased by 57 percent.
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